A MUM-of-two who has a hereditary disorder that she describes as like 'being buried alive' is appealing for help to find a cure.

Rudheath woman Jess Winstanley, 24, has discovered that she will develop Huntington's disease in later life after watching it take away members of her family.

She has lost her grandma and three uncles to the condition, which affects the central nervous system, while another uncle and an aunt have it and her own mum, who carries the gene, will develop symptoms.

Jess, who is renowned among her friends for reacting to posts on Facebook or Twitter within seconds, plans to endure a 24-hour stint without social media on September 16 to raise money for The Huntington's Disease Association.

She will be able to see that she has notifications pending but will not be able to read them or respond to them in a challenge that reflects, in a small way, the symptoms of the disease.

"There's no cure or prolonging," she said.

"It's very very similar to motor neurone disease where your muscles waste, you can't speak and can't swallow but your mind still functions.

"You can be sat there and your family is chatting to you but you can't respond.

"I put it as it's almost the same as being buried alive – your body is physically dead but your mind is there."

Jess, who has children Max, two, and Faith, seven months, also hopes to organise a ball at Mere Court Hotel, in Knutsford, in April to raise both funds and awareness.

But she is appealing for help to raise the £500 deposit for the room.

"Not many people know of Huntington's," she said.

"If you say the word 'cancer' people say 'yes, I know what that is', so I'm trying to hold the ball to raise awareness and also to raise as much money as possible.

"My grandma got it when I was first born 24 years ago and so much has happened in terms of progress since then.

"It's made me positive about what progress will be made in the next 20 years.

"The more people that are aware of it and the more money that we can raise for research then there may be a cure.

"I'm begging, pleading and hoping that there will be some kind sponsor out there who could possibly help with the £500."

Anyone who can help or sponsor Jess should ring her on 07711 081585 or email her on jess.winstanley@hotmail.com